In Sunny Kogarah

I'm a man of few words, but lets rewind this to our meeting with our Neuro, Lemtrada was the only way forward, and there was no way that I would let Mel do this without me, I wanted her to have the reassurance that we were in it together so, as you know from Mels posts, we were married in a secret ceremony with our friends and family, it was quite a wonderful experience, what a high!

And less than 24 hours later, when most newly weds would be boarding planes to exotic far away destinations we were sat in the oncology day ward at St George Private waiting for our first round of Lemtrada, not how i imagined our first days as husband and wife, but glad I was here with Mel in Sunny Kogarah

It's still hard to truly describe my side of the experience, early starts, trying to keep the brave face and sharing our experience with F&F, and helpless, so completely helpless. All I want to do is fix it but all I can really do is drive the car and make tea, mind you its the best damn cup of tea you ever had, polystyrene cup and all!

The days pass quickly for me, but I know its dreadfully slow for Mel, inflammation in the second day means that the steroids would continue for the full 5 days and not just three, the steroids are great for reducing the lesions and inflammation but effect Mel's precious sleep, the Lemtrada infusion would need to slow too now taking 5hrs instead of 4, I wish I could be there with her each day. The steroids are really playing havoc with Mel's emotions, lack of quality sleep will do that, I know it's hard so I just remind myself what she's going through and suck it up.

So now 4 days of infusions have passed, I can see each one is getting harder for Mel and thankfully tomorrow is the last one, but what happens next?