Day 5

Well this morning when I got up and got ready for my shower I noticed my body was covered in these big red welts, a little itchy but mostly unsightly, I looked like I had leprosy.. coupled with the usual headache I knew today was going to be the day - the day I would need to push - hard.

On arrival at the hospital I had to tell my nurses who had to tell my neuro. When my nurse came in to say he was on the phone I knew I was going to need to stand my ground, I was not going home without my Lemtrada, I was not coming in on Tuesday for it, I was leaving with it today. After a strong conversation where I stated my case, laid out the facts, both my doctor and I were happy to progress forward. I knew we would come away with a win!

My rash settled down and I only got a bit of sleep, but no doubt Lemtrada has done it's job and I am ready to get started healing. The drug stays in the body for 30 days whilst it destroys my immune system. After that, I'm on my own! These 5 days have been a fight, a good ole fashioned knuckle fist fight. I'm still in hospital doing my final observations, but I thought I would write now before going home, because if yesterday was anything to go by, I am going to be slaughtered in around an hour. Wiped out. KO'ed. Done.

Not sure how often I'm going to be posting moving forward, as I don't know what to expect other than exhaustion, once the methyl pred wears off, my body will shut down for healing. But I'll do my best!I want to thank everyone for all their support and kindness over the past 5 days, to both me and Nick. Your words of encouragement and constant thoughts have helped us through this. Finally, to my loving husband... you are the best husband I could ever ask for, you are amazing in so many ways.. one of these days I will find all the words I need to describe them.I know that deep down something amazing is happening to my body and it is this that keeps me pushing me through. You gotta push, push, push.