Day 4

Today started the same as the rest of the week, my cannula had stayed in from the previous day and the process of flushing it was a little painful. It was decided that not only will my Lemtrada be run over 5 hours again, they would also extend the methyl pred for two more days. (Typically you only get it for 3 days, I will be having it for 5). They also run the methyl pred a bit fast, which can be a little painful also, so I spent the first hour with a hot pad on my hand to help deal with it. Once they switched over to the Lemtrada, at a slow rate it was much more tolerable.

After lunch today, the feeling of being wiped out was taken to a new level and my head was pounding which nurofen was not helping, so I took some panadeine and I slept on and off until about 4.30pm. When it was time to leave, the decision was made to take out my 2nd cannula, which means that tomorrow I'll have a 3rd one put in. I hate cannula's put in and I forgot to mention that yesterday when my 2nd one was put in, I cried like a baby!

The walk down to the front doors, was like running a marathon... I was spent.... When Nick arrived with the car, I couldn't walk the rest of the way by myself, I had to have him help me to the the car, I called my Dad and the conversation just took me to another level of exhausted. I am sitting here now, with no other word to explain it but - wiped, a truck has side swiped me and wiped me out. I am physically exhausted and breathless. Saying this is getting hard is a complete understatement. I feel like my body is truly losing a fighting battle, which I think is a good thing... it's like the Lemtrada is finally beating my immune system, giving it that one punch it deserves.